Forms
Join the RBD Registry
The NAPS Consortium on REM Sleep Behavior Disorder (RBD) has established a registry for individuals living with RBD, partners and family of someone diagnosed with RBD, and those wanting to learn more about RBD.
This information is used to identify study participants, assist care teams providing care to individuals with RBD and to study RBD treatments and outcomes.
Your privacy is important to us. All personal health information (PHI) is protected and stored in a HIPAA compliant system.
In an effort to support investigators in the field of RBD and prodromal synucleinopathies, NAPS is recruiting healthy male and female volunteers (aged 50+) to participate in a research study.
You may be eligible to participate if:
You do not have a history of acting out dreams at night that would suggest RBD
You do not have a diagnosis of any of the following: Parkinson’s disease or other types of parkinsonism, multiple system atrophy, dementia, or mild cognitive impairment
You are not a blood relative of a study participant that has RBD
Forms for NAPS Sites
Available to NAPS personnel only.
Site Feasibility Questionnaire
NAPS currently enrolls participants with RBD at 9 sites across North America, and we hope to expand our network in the future. If you are a physician or researcher with RBD patients (or participants) and you are interested in leading a potential new NAPS enrollment site, please complete our Feasibility Questionnaire.
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Data Request
The form is designed to facilitate the sharing of data and biospecimens among researchers while ensuring compliance with ethical standards and regulations. It also helps streamline the approval process, fostering collaborative research and promoting transparency in the scientific community.
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Data Sharing Poilicy
The goals of the project can be best achieved through collaborative and open access to data and biospecimens, while respecting the intellectual contributions of principal- and co-investigators. This document presents the policy for access to data, access to biospecimens, and publications.
In an effort to support new investigators in the field of RBD and prodromal synucleinopathies, NAPS has implemented a mentorship program for junior investigators.
NAPS Mentorship Program is a research program designed to aid the career development of promising early career researchers in RBD and prodromal synucleinopathies by providing:
Access to NAPS data, biological samples, and infrastructure
Support for futures research projects
Opportunities to network with senior investigators in this field of research
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